Thanks to a grant from the state, NC doctors are getting first priority to submit cases of children who have/appear to have a PANS/PANDAS-like presentation.
The Neuroimmune Foundation is launching virtual face-to-face consultations with experts in the field of neuroimmunology starting September 13th!
Many clinicians struggle with challenging cases of presumed inflammation-mediated neuropsychiatric deteriorations (+/– post-infectious) that do not fit a defined diagnosis. Without clear biomarkers and clinical treatment pathways, many clinicians are unsure how to proceed. Even in quaternary care centers with multiple physicians working together on these cases, these highly specialized teams struggle with next steps.
The Neuroimmune Foundation has put together a panel with expertise in autoimmune encephalitis, multiple sclerosis, CNS vasculitis, neuropsychiatric lupus, Behcet’s disease, Sydenham chorea, PANS/PANDAS, autism deteriorations, and other post-infectious, inflammatory, and autoimmune brain disorders They are eager to share what they’ve learned from their experiences treating complex patients.
The Neuroimmune Consultation Panel is to help clinicians think through cases in a multi-disciplinary team setting. Some cases may be written up for publication in order to disseminate knowledge with consent from the family/patient.
This panel is being offered thanks to a grant from the state of North Carolina to help children with PANS/PANDAS. Therefore, through June 2023, priority will be granted to North Carolina physicians submitting cases of children who have/appear to have a PANS/PANDAS-like presentation.
The panel will meet the second Tuesday of every month at 4:00 – 5:00 pm Pacific Time.
Next meetings: September 13, October 11, November 8, December 13, 2022.
Each session will focus on one patient. Physicians wishing to submit a case for consideration may do so
at www.neuroimmune.org/panel-consultation (at least four weeks prior to the scheduled meeting).
Sam Pleasure, MD, PhD
Glenn W. Johnson, Jr. Memorial Endowed Chair in Neurology — University of California, San Francisco
David B. Lewis, MD
Chief, Division of Allergy, Immunology, and Rheumatology — Stanford University School of Medicine
Mark Pasternack, MD
Chief of Pediatric Infectious Disease, Associate Professor of Pediatrics — Massachusetts General Hospital, Harvard
Kiki Chang, MD
Co-Founder, Stanford PANS Clinic and Research Program; Adjunct Professor of Psychiatry, McGovern Medical School
Jennifer Frankovich, MD
Clinical Professor in the Department of Pediatrics, Division of Immunology & Rheumatology — Stanford University School of Medicine
Elizabeth Tong, MD
Assistant Professor of Radiology — Stanford University School of Medicine
Herbert M. Lachman, MD
Professor, Department of Psychiatry and Behavioral Sciences, Medicine, Genetics, and Neuroscience, Albert Einstein College of Medicine
For more detailed information please go to www.neuroimmune.org.